Friday, July 10, 2015
I'm writing from the hospital, where the LB is recovering from surgery. I mentioned back in the spring that he would be having surgery related to his kidney condition. He has had his surgery. I've been staying with him in the hospital. He's on a pediatric floor with a playroom (we hope to be able to check it out soon) and special visitors for the children. Yesterday, a woman did a demonstration with polymer clay at his bedside, making a figurine for him to keep. Today, three therapy dogs and their handlers came through the halls, stopping at each room to say hello.
I'm glad for the opportunity to stay with him. It's obviously no vacation, but I have had plenty of time to crochet and read. I watch evening thunderstorms from our sixth-floor window, with an amazing view across the city and out over the mesa. He gets lots of attention and excellent care. His recovery has been slow - it was a fairly involved surgery - but he's improving steadily. The Bear and the GB can come up and visit; she has been staying with her grandparents otherwise while the Bear works. There will be a period of recovery at home too, with a few follow-up medical procedures. I've been trained in catheter management and should be ready to take over once we are home.
We're doing okay, please don't worry about us. This is just part of life with my boy, who has always kept me on my toes, guessing at what might happen next with his complicated set of circumstances. It's all a little mysterious and we do the best we can. We've been so thankful for his new doctors, I really can't say that enough.
As for mysteriousness, one thing I was surprised to learn recently is that this boy has two spleens. His extra one is referred to as an "accessory" spleen. How about that? It's strange math - one kidney and two spleens - but he should be covered on the immunology front. I call him "Mystery" sometimes, as a nickname. He requested to be called "Mystery Meat" instead. Okay, why not? I asked him what kind of meat he was and he said penguin meat because it's oily and fishy, so it doesn't get eaten much. Intriguing and smart, this one. Here on the peds floor, each child has a sign on his or her door, with the child's name and a fun hand-drawn illustration. Guess what he has? A cool, shades-wearing surfer penguin. We didn't tell them, they just knew: that one's a penguin.
He brought heaps of books to the hospital with him. In among them, I spotted my seventies-era (old when I read it) copy of Are You There, God? It's Me, Margaret. Did you know there has been a re-issue, with some aspects updated for today's readers? I read it a couple of years ago. I don't mind if he reads this book, older edition or otherwise; it's a really good story. But there are questions even I can't answer, so when he comes asking about Margaret's belt, I may have to refer him to an elder stateswoman such as Grandma.
I hope you're all doing well and have had a good week. I'll be back soon.