Friday, July 10, 2015

Just now


I'm writing from the hospital, where the LB is recovering from surgery. I mentioned back in the spring that he would be having surgery related to his kidney condition. He has had his surgery. I've been staying with him in the hospital. He's on a pediatric floor with a playroom (we hope to be able to check it out soon) and special visitors for the children. Yesterday, a woman did a demonstration with polymer clay at his bedside, making a figurine for him to keep. Today, three therapy dogs and their handlers came through the halls, stopping at each room to say hello.

I'm glad for the opportunity to stay with him. It's obviously no vacation, but I have had plenty of time to crochet and read. I watch evening thunderstorms from our sixth-floor window, with an amazing view across the city and out over the mesa. He gets lots of attention and excellent care. His recovery has been slow - it was a fairly involved surgery - but he's improving steadily. The Bear and the GB can come up and visit; she has been staying with her grandparents otherwise while the Bear works. There will be a period of recovery at home too, with a few follow-up medical procedures. I've been trained in catheter management and should be ready to take over once we are home.

We're doing okay, please don't worry about us. This is just part of life with my boy, who has always kept me on my toes, guessing at what might happen next with his complicated set of circumstances. It's all a little mysterious and we do the best we can. We've been so thankful for his new doctors, I really can't say that enough.

As for mysteriousness, one thing I was surprised to learn recently is that this boy has two spleens. His extra one is referred to as an "accessory" spleen. How about that? It's strange math - one kidney and two spleens - but he should be covered on the immunology front. I call him "Mystery" sometimes, as a nickname. He requested to be called "Mystery Meat" instead. Okay, why not? I asked him what kind of meat he was and he said penguin meat because it's oily and fishy, so it doesn't get eaten much. Intriguing and smart, this one. Here on the peds floor, each child has a sign on his or her door, with the child's name and a fun hand-drawn illustration. Guess what he has? A cool, shades-wearing surfer penguin. We didn't tell them, they just knew: that one's a penguin.

He brought heaps of books to the hospital with him. In among them, I spotted my seventies-era (old when I read it) copy of Are You There, God? It's Me, Margaret. Did you know there has been a re-issue, with some aspects updated for today's readers? I read it a couple of years ago. I don't mind if he reads this book, older edition or otherwise; it's a really good story. But there are questions even I can't answer, so when he comes asking about Margaret's belt, I may have to refer him to an elder stateswoman such as Grandma.

I hope you're all doing well and have had a good week. I'll be back soon.

50 comments:

  1. Sending lots of get well wishes across the ocean for your son. It certainly sounds like he's getting very good care from both his doctors and his family. Thinking of you all. xxxx

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  2. Hello Jennifer! Glad to hear things went well for your son and that he is getting good care. Think of this as a special time that you get to spend together.
    Hugs to all of your lovely family!!!
    Ingrid xx
    Myfunkycrochet.blogspot.be

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  3. Jennifer, much love to you, and well wishes to the LB. I'm so glad you have found doctors that you are happy with. I know from my experiences with Alexandra how important that can be. It sounds like the hospital does a wonderful job go keeping kids entertained, and their minds off the pain and procedures as much as possible. Hopefully he is able to check out that playroom in the next day or two. Hugs to you...

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    1. That should read "wonderful job of keeping kids entertained."

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  4. All good thoughts to you all for the best recovery and outcome. xx

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  5. best wishes for a good recovery, and wishing you some good night's sleeps, I know it's not easy in a hospital.
    thinking of you xxx

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  6. Wishing your son a good and steady recovery. Sounds like he's getting all the best care he needs right now. Hopefully it's not long before you can both go home. Take care and best wishes.

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  7. I will be thinking of you both over the next few weeks and sending you big hugs. When you get home try to get some rest yourself, sitting by a hospital bed everyday and not sleeping well is exhausting. xxx

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  8. Times flies - I remember your blogpost when you first mentioned the upcoming surgery...
    I really hope he's not in too much pain and that his recovery will go smoothly !!! I'll keep my fingers crossed and will light a candle for you and the mysterious meat penguin ;-) !
    Wishing you lots of courage, Jennifer, and a big hug for you and the family !!

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  9. Sending lots of well wishes your way. Hoping he has a speedy recovery. Hugs to your family.

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  10. Thanks for letting us know what is happening just now, Jennifer. You and yours are often in my thoughts and I am glad to know that you have good family care and good medical care in such a stressful time. LB [alias the Surfing Penguin or MM] is very clever and I hope he heals as quickly as possible. My youngest son now nearly 40 was in hospitals for a total of six weeks in Boulder, CO., Denver, CO, then Kingston NY. when he was 6 with a mysterious digestive problem that remained a mystery but thankfully went away. Your crocheting, reading, and watching thunderstorms while at the hospital remind me that when my son was in the hospital I made a needlepoint star on large gauge canvas with thick cream colored yarn as a Christmas tree topper that I still use every year; and after my oldest daughter was born at the Boulder hospital in June, the lightening storms over the Rockies were amazing to watch from my hospital bedroom! It has been so long since I read the Blume book...I hope I can reread it soon. I just finished reading "Simplify" by Joshua Baker...he and his young family are adopting a minimalist lifestyle [I'm hoping his views will help me part with some of my unused "treasures." :) ] Know that I am cheering you and yours on to healthy happy days. xx

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  11. Lots of positive thoughts and hugs from over here. I'm glad his making a steady recovery, it's so stressful when worrying over your children. I hope your Penguin is soon home safe and sound xx

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  12. I remember Margaret! And her belt!

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  13. Wishing LB the very best and speediest recovery possible from the surgery......so glad it is over now and that you are happy with the doctors there. It must feel like a strange time for you all, and you are very good at keeping yourself and LB entertained during the hospital days. Sending love and hugs to you all, and I will be thinking of you and sending healing thoughts to your brave little boy. Hope you can get some rest too.
    Helen xox

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  14. Sending healing vibes, and good thoughts to all of you. Hope recovery goes smoothly, and that you know we are thinking of you. Hugs. xo

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  15. Sending lots of love and hugs to you all and get well soon wishes to your very brave boy.
    Marianne x

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  16. Sending mahoosive healing thoughts and vibes to your lovely boy for a speedy recovery.xxx

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  17. Oh, how I loved that book! I was a huge judy blume fan, I must reread her books sometime.

    I'm so glad the worst is over and that Lb is recovering well. I bet you can't wait to get home. Big love to you all xx

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  18. Jennifer, I hope the recovery goes well, LB sounds like such a star, and so do you. It's a lot for you all to go through, and I'm sending my very best wishes. I'm so very glad you've found doctors you have confidence in. My middle boy is a penguin as well, it's a good thing to be. CJ xx

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  19. Hi Jen, I know this was expected surgery but I know you must be feeling a little stressed. Im glad the surgery went well and now for the recovery and he is in the best, caring hands. Lots of love to you and family xxx

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  20. Keeping you all in my thoughts, Jennifer. Healing vibes being sent to the Mystery Meat boy! :o)

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  21. Awe thinking about you all, especially your brave boy!!
    V x

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  22. Warm thoughts to you and your family as you go through this healing process. Best wishes.

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  23. Best wishes for your boy's healing and for your strength. xx

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  24. Warm thoughts and well wishes for an uneventful good recovery. Having good medical care is sure the best!

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  25. As a mama, it makes my heart hurt to read about your sweet boy's surgery. It is never easy when our babies (no matter how old they are!) have surgery or are ill. One kidney and two spleens, huh? Well, one this is for sure: he is unique! I will keep all of you in my hearts and prayers through this recovery time.

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  26. Thinking of you and your family, Jennifer. I hope LB has a speedy recovery!

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  27. Glad the surgery is done and he's recuperating. It sounds like they have some good things to keep him occupied too,
    I'll be praying for a quick recovery!

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  28. Hope all continues to go smoothly. xo

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  29. Sending very best wishes to you all, especially your brave penguin. Here's to a full and speedy recovery and returning home soon. Sam xx

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  30. Wishing the LB a speedy and complete recovery. Thinking of you. It is really wonderful that you get to stay with your little boy. xx

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  31. I'm glad the surgery is over Jennifer, I hope that he has an uncomplicated and speedy recovery. xxx

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  32. sounds like you and little bear ('scuse me, mystery meat) have things well in hand. glad the surgery part is over; i'm sure each day is getting closer to being homeward bound.....moving in the right direction. thinking of you both.

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  33. I do hope all continues to go well for LB. I have just sent an ecard if you wonder what the email is! Hugs all round. x

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  34. Will send get well thoughts to the little one and calm nerves and soothing thoughts to his mama.
    I have been there, sitting by my child who is in a hospital bed. It is not easy, but they are so amazing, so resilient and so much quicker to get over everything better than we do.
    Be as calm as possible for your sake as well as his .. wishing you and the little bear all sorts of luck and get well wishes. besos C

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  35. Thinking of you Jennifer as you support your brave boy during his recovery. I hope you will all be together at home very soon. Best wishes, Sarah

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  36. Thinking of you all as your dear son starts his road back to health and a full and happy life xxxx

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  37. Oh bless, thinking of you all, it sounds like he is in good hands. Take care x

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  38. Virtual hugs to you and your little penguin and best wishes for a full and speedy recovery. I've never heard of Margaret or her belt ........ I'm intrigued! xx

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  39. Hey Jennifer, really glad surgery went well and sending you lots of love and best wishes and more love snd a big hug. I know I find it hard with my son, but I am so grateful we don't have to go through anything like this. Such a worrying time for you.
    I remember Margaret. "I must I must increase my bust" but I'd forgotten about her belt!
    Jillxo

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  40. I'm glad to hear the surgery went well.. sending some healing energy his way. We're in Vegas now and I've been fascinated by the Bellagio fountain shows every half hour. We head to the Grand Canyon on Monday. ((hugs)), Teresa :-)

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  41. I hope all goes well for you Jennifer. I also love how you're so upbeat (as is your little one). It sounds as though he's receiving wonderful care, both from the hospital and yourself.
    And Judy Blume books - that takes me right back!
    S x

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  42. Dear Jennifer, So glad to hear the surgery went well, and you and your boy are receiving the best of care. Take care of you, too. What a lovely boy you have, taking his well-chosen books, and the penguin as his sign. Blessings to you all.

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  43. So glad the surgery went well, here's hoping the recovery will to. Best wishes to you all and that you will all be back together again soon.

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  44. Hi Jennifer, I do hope LB's recovery is continuing and you're all doing well. Take care and thinking of you x

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  45. Glad the surgery went ok wishing him a speedy recovery, look after yourself too, sending hugs
    Clare x

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  46. Hugs and kisses to you and your little shade wearing penguin. It is wonderful that you can be there with him, comforting to you both. Take care , my love

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  47. Hi Jennifer, I hope your son has a speedy recovery! Hugs

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  48. I loved Judy Blume!! I read an article recently about a new book she's written. Hoping the LB makes excellent progress!> Sending hugs xx

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  49. Crazy week here so I'm only just catching up with everyone and I've missed all your news. Weirdly I have a friend - much younger than me - who has no spleen and three kidneys. It all sounds a bit like the storks elves have bad days on the production line ;o)

    I'm so glad I've already seen your latest posts and know that the young penquin's recovering x

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